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Showing posts from June, 2019

There's no way around it.

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The nurse is downstairs with Dermot. I'm upstairs at my computer. I'm gearing up for my second trip to Target today. The prescription was sent to the wrong pharmacy and I'm chasing it down. Only took four phone calls and about seven minutes on hold. My quiet panic that lives beneath my sense of well being is slowly creeping to a low hum. My heart is beating a little faster and my insomnia is getting in the way of a good night's sleep. Oh and also the fact that every other night I get up in the middle of the night with Dermot to remedy his lack of oxygen. Turn it up? Nebulizer treatment? Or the ever popular deep suction. Last night it took all of those. This is typical these days and as my husband and I trade off every other night the lack of sleep over a twelve year period is taking a toll on both of us. Is this his new baseline? My short term memory is shot. I stutter occasionally, lack of desire to participate in activities and a general feeling of isolation. Bein...