Monday, August 25, 2008
My beautiful Dermot. This summer has been tough for him. His seizure disorder continues and so does our journey with doctors, therapies and drugs. At one time this summer Dermot was on 4 different medications all at once, not surprisingly he turned into a lethargic blob. We said enough, he's now on two medications and is being slowly weaned off one of them, Klonopin. In case you've never heard of it, it's in the barbituate family of drugs, we didn't realize 18 months ago what exactly it was when we agreed to give it to him. Our hope is that he'll continue to be less drowsy, drooly and floopy as we wean him from it.
Dermot has been very busy with appointments this summer. Along with the two weekly physical therapies and occupational therapy, I have taken him to see a chiroprator, an herbalist and a physiatrist. In the coming weeks he will go to the opthamologist, have an MRI and a few blood tests to check for genetic disorders. I started to get more active in his healthcare because I fear something is happening to Dermot. He's not quite what he used to be. He's lost some skills and abilities. It's breaking my heart. We are determined to try new treatments, alternative treatments to make Dermot better. I'm not looking for a miracle cure, but I'd like him to have less seizures. He has around 30 a day.
I feel blessed that wehave a family with such love. We celebrated Dermot's second birthday in July and he was surrounded by many people who love him dearly.