Tuesday, February 23, 2010

Fourth time

Just as I crossed the last thing off my grocery list, I heard a muffled chime from my purse. I thought to myself, I wonder if its Dermot's school. Not really believing it was, but teacher Jan was on the other end of the line.

"Hi Sue, Laurie has administered the Diastat for Dermot", she said with a tinge of sadness in her voice. "Okay, I'll be right there" I said. I looked down at my full cart of much needed groceries and pushed them to the register. One part of me wanted to continue and check out as if nothing was happening, the other, wiser part said "get the hell out of here". Another abadoned cart at the grocery store.

This time I call Joe, "I'll meet you there" he says. Three stoplights later and a quick jaunt on the highway and I'm there. Wiped the tears away and ask the receptionist for admittance to the special education wing of the school. I walk briskly to Dermot's classroom. The other little boys are having circle time with the student teacher and look over quickly as I arrive, then they're back to their lesson. Dermot is lying limp in the school nurse's lap, separated from the other kids by a partition. He's still seizing, fifteen minutes after the Diastat is given. The nurse decides to call 911. Is this really happening? I think to myself, yep it is.

Dermot's eyes are open, mouth open, tongue stuck to the roof of his mouth. He's breathing, that's good, no response to stimulis (mom kissing him, dad calling his name over and over, etc.). A police officer gets there first, I think it's proctocol. EMT's are not far behind. They check his vitals, glucose, all are within normal range. Finally Dermot starts moving his hand, he searches for my hand. He's still not all there. Then I feel his stomach muscles contract. He wants to sit up. Absolutely Dermot! Let me help you up. Joe decides we don't need to go to the hospital, I didn't know what to do. Maybe that's why I asked Joe to meet me there this time. Thanks Joe, thank you for being there.

As I write this, Dermot and Joe are at the hospital lab getting blood drawn to make sure his drug levels are all in therapeutic range. Then we'll call the neurologist again. They'll tell us to wait and see, then give us a different drug to add to the growing list.

Tomorrow we're off to the gastroenterologist to talk about getting Dermot a feeding tube, but that's tomorrow. I'll write about that tomorrow...

7 comments:

Natalie and Josh said...

Thank you for writing, Sue. I'm so glad to hear that Dermot has made it through with such courage. He is a very determined little boy (and such a sweetie). And glad Joe could be there to hold you both up for this one. You are brave and because of that Dermot is, too. Thinking of you, praying for continued strength partnered with supernatural joy, abandoned grocery carts and all...

janfritze said...

Oh, how I did not want to make that phone call, Sue. How desperately we hold to the necessary belief that Dermot's tenacity and the unending love and devotion of family and friends can protect and strengthen him. He is always in my thoughts . . .

Fawn said...

Oh, Sue, why can't you and Dermot (and the rest of the family, too!) just get a break? :(

Anonymous said...

I'm sorry to hear about your scare with Dermot...if it had to happen I am glad it was here at school...I came in late...what I witnessed was a loving Mom and Dad with Dermot...and the three of them surrounded with people who care very much for Dermot and your family... I didn't come in..but please know my heart was with you all...Joan B

Anonymous said...

Sue and Joe,
I'm so sorry to hear of your scare with Dermot...we so wish those seizures would just go away...but.. if it had to happen...I am glad it was here at school...I came back to the center late...what I witnessed was Dermot with his loving Mom AND Dad...and all three surrounded with people who truly care about Dermot and your family...I didn't come in...but I'm sure you know you were all in my heart... Joan B.

Kate J said...

Oh Sue, I am so sorry that this is happening, and I wish I had some comforting words. Let me just ditto Natalie and the other ladies. You are a wonderful mom, and I hope and pray for brighter days. {{{Love}}}

Kelly said...

My thoughts are with you and your family. I am glad Joe was there with you yesterday. I wish there was something I could do or say to make it better for you. Please know you are in my thoughts and prayers and have always admired your strength and courage.....