Big brother Owen

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Letter to Dermot

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"Letter to Dermot" Dermot, I’ve been trying to put off this letter for quite some time. I just gave birth to your little brother and have realized how heartbroken I am over you. I look at pictures of you and get a tinge of sadness where I should get joy. I see the things you cannot do and the things you won’t be able to do. I’m so sad about it. I feel responsible, so much more than anyone else knows. I look back on the day you had your first seizure and I’m so angry with myself that I didn’t know what was happening. I feel like the length of time was my fault and that it caused more damage to your brain than was necessary. I’m so sorry. I know that you deserve the best in everything for your life and my regrets run deep. God has a plan for our family, I know. All of the challenges that you go through help make us stronger, but I wish more than anything that I could take all the pain away, all of the drugs, all of the therapy. I sometimes imagine you as a normal little guy get...
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Profoundly

I've written many essays in my head. There's the one about being embarrassed by Dermot throwing up in the hospital cafeteria, or the one about friends and how they've changed over the years, or the story about the man I met at the hospital with the nineteen year old son with Dermot-like disabilities or my favorite, the way I use chocolate chip cookies as therapy. I sit in waiting rooms and write in my head, by the time I get home the details are lost or the energy has left me. I sit awake in bed staring at the ceiling knowing what I want to write, then I get out of bed, start up the computer and my words have left my head. I've been struck by how profoundly sad I am. I am really sad. The challenges keep coming, changing. I've learned many coping mechanisms, I've found a higher power to run the show, I seek out help from support groups and therapists, I volunteer to help others. All of these things make me feel better, but to my bitter disappointment, they do...
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Note to my inner child.

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 Suzy, I’m looking at a photo of you when you were coloring. I wanted to tell you a few things. When you grow up you will become a beautiful, strong, smart, funny human. Unfortunately, there will be a lot of pain in your life. I know right now mom just left. I think you know it wasn’t your fault, but I wanted to tell you again. Mom had her own demons to deal with and didn’t have the right tools to figure them out without hurting others. She loves you. I hesitate to say that because it’s still hard to believe that she would leave such a kind, creative little girl such as yourself. If I was your mom I would have squeezed you to pieces every day and been wildly proud of you. You have always had a level of compassion in you that came naturally. Your heart is big. I think that’s why it hurts so much when people let you down. You didn’t deserve to be forgotten or disregarded. Your light keeps getting dimmer because no one was there to be on your side and make you a priority. It happe...
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