My beautiful boys


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Letter to Dermot

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"Letter to Dermot" Dermot, I’ve been trying to put off this letter for quite some time. I just gave birth to your little brother and have realized how heartbroken I am over you. I look at pictures of you and get a tinge of sadness where I should get joy. I see the things you cannot do and the things you won’t be able to do. I’m so sad about it. I feel responsible, so much more than anyone else knows. I look back on the day you had your first seizure and I’m so angry with myself that I didn’t know what was happening. I feel like the length of time was my fault and that it caused more damage to your brain than was necessary. I’m so sorry. I know that you deserve the best in everything for your life and my regrets run deep. God has a plan for our family, I know. All of the challenges that you go through help make us stronger, but I wish more than anything that I could take all the pain away, all of the drugs, all of the therapy. I sometimes imagine you as a normal little guy get...
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To give care.

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Noelle Jes Jess Mark Melissa Beauty Darci Lydia Lilian Erin Cynthia Zoey Amanda Beth Danny Talila Elin Mauvlette Lauren Kayla Anoma Shafali Duane Ashley Laurie Beth Donna Nicole Cate Brittany Abbey Dee Katie Tuujii Cari Clara April Eileen Emma Evalyne Cassie Isabella Meridith Mike Ashley Esther Elayna Larone Sharo Tonya Anne This is a list of some of Dermot's caregivers over the years. I'm sure I've forgotten some. This list brings up a lot of feelings. Gratitude, anxiety, shame, joy, sadness, longing, exhaustion, anger, frustration, and desperation You see, all of these people have been in and out of my house, all day, every day. They come and go depending on their dedication to their jobs and when the next step on their career ladder is met. Some I knew for years and still stay in touch. Some others show up once or twice, then ghost us, leaving us no explanation for their departure. They see and hear our family's conversations, our arguments, and they hear me when I f...
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Leaf Blowing on Easter.

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 As I stand in my decimated backyard with my leaf blower on, I think of the mom's group Facebook post last week complaining about her neighbor leaf blowing after 6:30 at night and how inconsiderate it was. To comment on this post would not be helpful. I walked outside my house this afternoon and was stunned by the stillness and the quiet. It's Easter, people went to church, had an egg hunt in the park, and are getting ready to attend brunch at the country club with friends and family. I don't celebrate easter. not because I don't believe in God. I just don't require a special day to talk with God. My sixteen year old got a shit ton of candy from Peter Cottontail and that's enough. I need to move, I need to accomplish something measurable today. The backyard is a big dogs' playground. All of the grass had worn off from the constant play between my Vizsla and my Doberman. The mud was so bad that I put straw all over the lawn to soak it up. Now, I tell myself, ...
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