Wednesday, September 3, 2008
Today Dermot had his MRI and his blood drawn for some genetic tests. He did great, 90 minutes later he woke up shivering from the anesthesia, hungry and happy.
Later that same day, Dermot's new "stroller" arrived.
We've been looking forward to and dreading the arrival of Dermot's new "mobility device". It will allow him to be MUCH more supported while sitting, thus more engaged with his environment. It's a little scary because I'm sure we'll get "the stare" a little more than we do now, but I'm learning to get used to it.
Today was also the last day for Aunt Mary and Aunt Susan to stay with us. Everyone appreciated their visit. They made a few dinners for us and watched the boys more than once. What a helpful and enjoyable visit!
Next week is Dermot will start the ketogenic diet. We'll be admitted to the epilepsy ward at Children's St. Paul on Monday and have been told we'll be there 5-9 days.
Here's a link to more on the Keto Diet
It's going to be a lot of work, but it may mean getting Dermot off some of his seizure meds and be rid of the side effects that come along with them.
More info will come later...